Some friends in Southern West Virginia have started a Extra Life team, known as WV Fox, to raise money for the Cincinnati Children’s Hospital. As part of the Children’s Miracle Network, Cincinnati Children’s Hospital helps thousands of children every year regardless of illness, injury or their family’s ability to pay. WV Fox takes their name and inspiration from a 4-year old Hero Kid named Maxwell who has a rare genetic syndrome called Fox G1.
Fox G1 syndrome is a neurological condition that happens most commonly from a spontaneous, non-hereditary genetic mutation that occurs in utero. Symptoms of this syndrome include profound, global developmental delays, microcephaly, seizures, cortical vision impairment, low muscle tone, feeding issues, sensory processing disorders, and inability to verbally communicate.
In Maxwell's case, he is non-verbal, has a cortical visual impairment, he cannot sit, stand, walk, or feed himself and requires a feeding tube to nourish his body. Aside from these challenges, Max is the happiest little guy. He loves Mickey Mouse, Puppy Dog Pals, music, swimming, and people.
The doctors, clinicians, and therapists at Cincinnati Children's Hospital see Max every 6 months, and have provided strategies to help his family provide the very best of care for him. By donating to his campaign, or by joining Team WV Fox, you help Maxwell, and so many children like him who depend on Cincinnati Children's Hospital and their amazing staff to provide excellent care!
For those of you who are unfamiliar, Extra Life is a charitable organization that unites gamers in support of their local Children’s Miracle Network Hospitals. Raising money to help children, while playing the games we love it’s a win-win! The WV Fox team have set an ambitious fundraising goal ahead of their 24-hour gaming marathon on Star Wars Day, May the 4th (#puns).
To try and support the team, I reached out to my buddy Jerad Bailey last week to discuss designing a bespoke terrain piece that could be auctioned off as part of their fundraising efforts. He put me in contact with their team captain, Geoff Cullop and we excitedly began riffing on each other’s ideas to create something unique that Heave Ho Studio could donate to their cause. The end result was a rough sketch for a Japanese themed outdoor shrine known as the Forest Shrine of the Celestial Fox.
While early in the design and implementation of this project, I wanted to share this with my shipmates as a way to promote the work that WV Fox and Extra Life are doing to help children and their families. You’ll be able to see the project evolve here at Heave Ho Studio through pictures and narrative as it takes shape. If you like what you see in the WV Fox Portfolio, we would love for you to participate in the auction of this one-of-a-kind terrain piece, or you can donate to WV Fox’s team page directly through a secure link on extra-life.org here. Honestly, why not do both?